What we do?

We organise a variety of activities and events throughout the year to support families impacted by Sickle cell, raise funds and awareness.

“Cianna’s Smile is dedicated to making a positive change in the UK to raising awareness of Sickle Cell in the UK and supporting families impacted by the condition”.

Activities we organise include the following:

  • Sickle Cell action group – Days out and activities for families who are members of our Sickle Cell action group. This enables families impacted by Sickle Cell conditions to become members and attend these days out. We also offer support and advice as and when requested. This may include referrals to another organisation or a local healthcare team. We do not offer any medical or financial advice.
  • Fundraising –We hold several events throughout the year to help raise monies to fund our projects including our Annual Awareness Ball and family fun day.
  • Awareness campaigns – Awareness is key to fulfilling our mission to make more people aware of Sickle Cell conditions. Our awareness campaigns include public talks, social media coverage, community events and other interactions within our community.
  • Carers lunches– Carers lunches for parents and carers of children with Sickle Cell.
  • Book Club–We provide free books via post to children and parents/carers impacted by Sickle Cell. Our virtual book club meeting for children over 7 year olds and adults is the perfect opportunity to discuss the books. This club is to reduce isolation experienced by children and others impacted by Sickle Cell in the UK
  • Wellness days– A one day event to educate families impacted by Sickle Cell on alternative therapies and diet to prevent and manage symptoms. The day will include, a Pilates class, a lesson on nutrition with demonstrations and tastings, breathing techniques to help with pain management and anxiety/stress, self massage and massage techniques to help with pain, using essential oils safely.
  • Focus groups– Each month we hold focus group in a different area of the South east of England. The purpose of the focus groups is to collect data from beneficiaries about what they want and how we can ensure that our projects are beneficial.
  • Youth entrepreneur club–  The Cianna's Smile Youth Entrepreneur Club is a virtual club designed for young people aged 8 to 16 living with sickle cell and their siblings. This engaging online club teaches valuable digital skills to spark creativity and develop career-ready abilities. Participants will explore exciting skills like digital illustration, podcasting, photography, Excel, animation, and web design, among others.

    Led by skilled instructors, each session introduces a new skill through hands-on projects, allowing young people to create, connect, and share their work. The club offers a supportive and interactive environment, where members can build confidence, learn practical skills, and discover the power of digital expression—all while having fun and making new friends. Join us to start your digital journey!

  • Virtual coffee mornings– An opportunity to meet other families and build friendships. We meet fortnightly on Zoom and everyone is welcome.